The Internet: Communication; Information; Misinformation
Comment
The Internet has become a valuable instrument for communication of
the written word. In the past, direct oral speech and the written word were the
principal means by which people communicated. The telephone and radio increased
the opportunity for oral communication; now reinforced by cellular phones, oral
communication has become nearly instantaneous, nearly always available and can
include several persons separated by great distances.
The Internet has
done the same with the written word. Being able to send a written message
rapidly and at modest cost (providing both parties have the appropriate
equipment) raises written messages to the same level of convenience and
availability that has been achieved with oral communications.
In
addition, the Internet is also beginning to have profound effect on the storage
and retrieval of information, including medical and scientific information. Most
new scientific and medical information before being published are
"peer-reviewed." The information (generally a manuscript) is submitted for
publication to a journal. The journal editor assigns the manuscript to several
experts in the field and receives their comments about it. The reviewers'
comments are shared with the manuscript's authors, who generally revise the
manuscript to address the concerns of the reviewers. The journal editor is then
able to decide whether to publish the revised manuscript or reject it. This
process is call "peer-review" and is the method used by nearly all accepted
scientific and medical professional journals. It assures the reader that experts
in the field have found the manuscript scientifically acceptable, the new
information can be relied upon, and it is of enough importance to be published.
A number of scientific journals are now using the Internet for
publication of the abstracts of peer-reviewed manuscripts accepted for
publication; sometimes for publication of the whole manuscript. But like
publication in a written journal, the manuscripts or abstracts have been
peer-reviewed and the information is considered to be reliable and
significant.
However, anyone who subscribes to the Internet can transmit
nearly anything he/she wishes --- without peer-review. Under these
circumstances, the reliability of the information is uncertain and each Internet
reader has to be his/her own judge.
Nearly all scientifically reliable
authors would be very hesitatant to transmit a manuscript on the Internet
without the benefit of the peer-review mechanism. For example: describing a
clinical experience (e.g. a new treatment) may be interesting but can be
misleading. The reliability of the description can be affected by several biases
involved in patient selection and in the interpretation of the observations
reported upon. A clinical observation or series of observations can serve as the
basis for the development of a clinical trial, but very rarely qualify as the
equivalent of a clinical trial. Thus, clinical observations described on the
Internet generally would not be accepted by a peer-review journal as being
scientifically acceptable for publication.
The Internet certainly
improves communication and can serve as a useful means of sharing medical and
scientific information. But the information can be very misleading unless the
reader is either skilled in the field or has assurance that the information has
been peer-reviewed. Just because someone has put information on the Internet
does not mean it is true or reliable. Medical and scientific information that
has not undergone peer-review can easily be misinformation. Before you believe,
check it out with a reliable expert. The Internet is an excellent method of
communication, but not necessarily an excellent source of reliable
information.
United Cerebral Palsy Research and Education Foundation,
November 1999